However, it can be tough to know where to start.
Thats why AARP developed this simple guide to help you and your family navigate the dementia care journey.
Be aware that any information you provide to the host organizations will be governed by their privacy policies.
What Is Dementia?
Alzheimers is one pop in of dementia, and its the most common one.
It accounts for 60 to 80 percent of the cases diagnosed.
The hallmark symptom of Alzheimers dementia is memory loss.
Did you know?
See the Endnotes section for further reading about the points above.
Ask for help.
Friends and family will often ask you if there is anything that they can do to help.
Use your online grid and ask others to help you look for resources and information in your area.
If possible, use the Internet.
The Internet is an easy and quick way to get information.
Because information can vary, it is important not to rely on one site alone.
Talk to a real person.
Many phone numbers will lead to voicemail.
Its important to leave a message, but dont wait for someone to call you back.
Keep in mind that some services have backlogs of calls to return.
Keep calling back until you connect with someone who can help you.
Write down your questions in advance.
Keep track of your conversations.
Keep a notebook of who you talked to.
Write down names, phone numbers, and notes from each call.
You never know when you will need the information down the road.
No one person or organization has all the answers.
It is always smart to be prepared with other resources and organizations that can help.
Use your creativity.
Create your own personal resource online grid.
This could include contacting community-based agencies to find out what kinds of support services are available in your area.
Consider asking friends or other caregivers what resources they found useful.
Many services are local.
Services can vary widely from state to state and community to community.
ensure you look for resources that provide services where you live.
Parkinsons Foundation
Provides information about living with Parkinsons disease, hospital care kits and ongoing research.
Note: 13 states and local regions also maintain robust Independent Regional Parkinson Organizations.
Google that phrase to find out if there is one near you.
Offers virtual discussion groups and resources for living well with dementia, including information about assistive technology.
National Council of Dementia Minds
A nonprofit organization led by people living with dementia.
Other Helpful Resources
Alzheimers.gov
The official federal government website about Alzheimers disease and related dementias.
Managed by the National Institute on Aging, National Institutes of Health and U.S. Dept.
of Health & Human Services.
These agencies are funded by state and federal grants, and not affiliated with the insurance industry.
Provides quality ratings so you might compare the options in your area.
Maintained by the federal Centers for Medicare and Medicaid Services.
Medicare
Provides information about the Medicare program and how to find Medicare plans and providers.
Veterans Administration: Caregiver Support Program
Provides supports and services for individuals or families caring for veterans.
Connects caregivers with local caregiver support programs for veterans.
Individual attorney fees will vary.
It is free to use and searchable by zip code.
