(The couples two other children are developmentally normal and are in college and medical school.)
I was a little resentful about that, so now Ive taken a secondary role.
We really had to fight for that and we won with the help of a pro bono lawyer.
Kevin was able to do that for a few years.
Kevin is a rooster he gets up at 5:30 and wants something to eat.
We keep him on a regular eating schedule because otherwise hell get angry.
Ill bathe him and get him dressed, then well go outside.
We take a couple of walks every day and he likes to be in the yard.
Norma: A lot of the time Kevin likes to do his own thing.
Other times hell come over and hug me, which makes me feel happy.
Those moments are very positive and rewarding.
Corky: He definitely comes to us for comfort and he likes to hug us.
When hes really happy about something, its gratifying to see him enjoying himself.
The other thing is: Its really difficult for us to find meaningful time for each other.
Our situation is quite challenging.
As told to Stacey Colino
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